The Life-long Care of Individuals with Lennox-Gastaut Syndrome: Strategies for Outcomes Optimization from Childhood Through Adulthood

Faculty

Elaine Wirrell, MD
Moderator
Professor and Chair
Child and Adolescent Neurology
Mayo Clinic
Rochester, MN
Tracy Dixon-Salazar, PhD
Executive Director
Lennox-Gastaut Syndrome (LGS) Foundation
San Diego, CA
Bethany Thomas, DNP
Epilepsy Nurse Practitioner
Hospital of the University of Pennsylvania
Philadelphia, PA

Statement of Need

Lennox-Gastaut syndrome (LGS) remains a challenging condition to understand, diagnose, and manage. Neuroscience/neurology clinicians, including nurses and nurse practitioners (NPs), encounter significant challenges in the management of patients with LGS, due to the severe symptoms and morbidities, diagnostic delays, and therapeutic barriers involved with the condition. Patients with LGS need interdisciplinary collaborative care that includes optimal and long-term management plans to minimize disease burden and maximize quality of life (QoL) over the lifespan.

In this CME Outfitters recorded symposium, expert faculty will discuss the disease burden and impact of LGS on QoL for patients and caregivers, the utilization of diagnostic criteria and distinguishing features of both early- and late-onset LGS to achieve early and accurate diagnosis, and strategies to optimize LGS management across the lifespan of these patients.

Learning Objectives

At the conclusion of this activity, learners will be able to better:

  • Evaluate the disease burden and impact of LGS on QoL for both patients and caregivers
  • Utilize diagnostic criteria and distinguishing features of both early- and late-onset LGS to achieve early and accurate diagnosis in all patients
  • Develop strategies to optimize management of LGS across patients’ lifespans

Financial Support

This program is supported by an independent medical education grant from Jazz Pharmaceuticals.

Target Audience

Neuroscience nurse practitioners (NPs) and nurses 

Credit Information

Jointly Accredited Provider

In support of improving patient care, CME Outfitters, LLC, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.

Nurses (ANCC) 1.0

This activity is designated for 1.00 contact hours.

California Residents: Provider approved by the California Board of Registered Nursing, Provider # CEP 15510, for 1.00 Contact Hours.

Disclosure Declaration

It is the policy of CME Outfitters, LLC, to ensure independence, balance, objectivity, and scientific rigor and integrity in all of their CE activities. Faculty must disclose to the participants any relationships with commercial companies whose products or devices may be mentioned in faculty presentations, or with the commercial supporter of this CE activity. CME Outfitters, LLC, has evaluated, identified, and mitigated any potential conflicts of interest through a rigorous content validation procedure, use of evidence-based data/research, and a multidisciplinary peer review process. The following information is for participant information only. It is not assumed that these relationships will have a negative impact on the presentations.

Dr. Wirrell reports the following financial relationships:

Advisory Board: Jazz Pharmaceuticals, Inc. and Longboard Pharmaceuticals

Consultant: Data Safety and Monitoring Boards (DSMB): Acadia Pharmaceuticals Inc.; Amicus Therapeutics, Inc.; Encoded Therapeutics, Inc.; GRIN Therapeutics; Longboard Pharmaceuticals; and Neurocrine Biosciences, Inc.

Research Support: Takeda Pharmaceutical Company Limited/Ovid Therapeutics Inc. (Site Principal investigator for OVID935 in DEEs)

Dr. Dixon-Salazar reports no financial relationships to disclose.

Dr. Thomas reports the following financial relationships:

Advisory Board: Jazz Pharmaceuticals, Inc.; Neurelis, Inc.; and SK Life Science, Inc.

Consultant: Jazz Pharmaceuticals, Inc. and SK Life Science, Inc.

Speakers Bureau: Jazz Pharmaceuticals, Inc.; Neurelis, Inc.; and SK Life Science, Inc.

The following individuals have no financial relationships to disclose:

Thai Nguyen, MD, MHA (Peer Reviewer)
Shirley Michelle Franks, MSN, APRN, FNP-BC (Peer Reviewer)
Susan Perry (Planning Committee)
Chelsey Goins, PhD (Planning Committee)
Scott J. Hershman, MD, FACEHP, CHCP (Planning Committee)
Sandra Caballero, PharmD (Planning Committee)
Sharon Tordoff (Planning Committee)

*All identified conflicts of interest have been mitigated.

Unlabeled Use Disclosure
Faculty of this CME/CE activity may include discussions of products or devices that are not currently labeled for use by the FDA. The faculty have been informed of their responsibility to disclose to the audience if they will be discussing off-label or investigational uses (any uses not approved by the FDA) of products or devices. CME Outfitters, LLC, the faculty, planners, and reviewers do not endorse the use of any product outside of the FDA labeled indications. Medical professionals should not utilize the procedures, products, or diagnosis techniques discussed during this activity without evaluation of their patient for contraindications or dangers of use.

Questions about this activity?

Call us at 877.CME.PROS (877.263.7767).

MMV-146-032025-43

The Life-long Care of Individuals with Lennox-Gastaut Syndrome: Strategies for Outcomes Optimization from Childhood Through Adulthood
Event Date: 03/20/2025